Those of you who know me well know that I am one of those people who, as a child, was always in search and support of a good cause… I trick-or-treated for Unicef, raised money for “Jerry’s Kids” with Muscular Dystrophy by knocking on doors, walked 20 miles with Christine or Josie for a pledge of 10 cents a mile in support of the March of Dimes. As I grew older, I did my bit with United Way and Salvation Army, too. It seemed there was always some needy kid who I was compelled to help or research group to be funded. There was always a cure on the horizon for lots of horrific diseases and disabilities.
But I did that without any real personal involvement. I didn’t know any of those kids. I was sympathetic to their plight. But I had no had no real feeling for what they endured.
Now, I have a new cause. And this one I embrace with all my heart and soul and every single fiber of my being, because it affects my youngest child. Some of you may not know this, but a little more than a year ago, our daughter, Alexandra who was 7 years old at the time, was diagnosed with type 1 diabetes, or what used to be called juvenile diabetes.
Now, I didn’t know anything about diabetes. I knew Mary Tyler Moore had it, but couldn’t figure why it was called “juvenile” diabetes – certainly she was no juvenile. I knew diabetes had to do with sugar and sweet stuff, but I didn’t know anything else.
Boy, what a difference a year makes.
I’ve learned that type 1 diabetes is an auto-immune disease; that a person’s body basically attacks itself – in this case, the pancreas – and that nothing a person did or didn’t do could have prevented it. No one knows why some people get it and others not. The pancreas no longer produces insulin, a hormone needed to convert the sugar and carbohydrates you eat into energy.
Without insulin, plainly speaking, Alexandra will die. But insulin – as wonderful as it is – is not a cure.
The only cure is a cure.
But there is hope on the horizon, and it takes the form of Dr. Denise Faustman of Massachusetts General Hospital. Dr. Faustman has actually cured type 1 diabetes in lab mice, with an FDA-approved drug that is already on the market. The problem is, because the drug is already on the market and widely available, there’s just no financial incentive for the pharmaceutical companies to embrace Dr. Faustman’s efforts.
I won’t bore you with the details. Suffice to say it’s something I’ve researched, and I am more than hopeful that within my daughter’s lifetime there will be a cure.
But the cure won’t come without funding. The Lee Iacocca Foundation has contributed $10 million to jumpstart the human trials, and money is trickling in through grassroots organizations such as one I’m happy to be a small part of – Help Cure Childhood Diabetes.
So, if you’ve stuck with me this far and you knew me as a child, you know where I’m going with this… please help. Your donation toward research for a cure would be appreciated more than you can ever know. This link will take you to Alexandra’s web page and from there you can link to the donation page at Massachusetts General Hospital.
And if you just can’t make a donation right now – times are tough here, too, I understand – I’d appreciate your prayers instead.
With thanks from the bottom of our hearts…
Barbara and Sylvester
