After four plus years of playing the role of
pancreas-by-proxy for my daughter Alexandra, I thought I’d seen it all but I
was in for a surprise. My friends on Facebook know what I’m talking about;
they’ve seen my many laments about insanely crazy overnight high blood sugars
that refuse to fall in line despite a quart of insulin. I’d have better luck
just saturating the mattress with her Humalog and hoping that osmosis will do
the trick. It’s puberty. I guess my baby can’t stay my baby forever.
Other parents with daughters of a certain age I am sure
share with me that bittersweet moment when they realize that their baby is
growing up. For them I’m sure it’s the first few subtle signs –hair where there
used to be none, the newfound need for a size 28AAA bra to cover tiny bumps,
the promise of long, lithe limbs which are just now at the awkward, gangly
stage. We won’t even go into the
attitude adjustment now that Alex is a pre-pubescent tween.
It’s apparently a lot of work to grow up, and the body is a
magical thing. I think I would find it much more magical if I weren’t too
keenly aware of how hard it is. I want to be awed by the magic, damn it, not exhausted by it.
But parents of daughters (and sons to a slightly lesser
extent) with type 1 diabetes who are going through puberty know first hand how
hard the body is working to mature our child, to make them ready for adulthood
and to eventually procreate (oh God did I just write that?!). We parents of T1
kids see it in elevated blood sugars, a side effect of the growth hormones
which makes blood glucose much more resistant to insulin. I’ve had nights where
I couldn’t budge Alex’s sugar out of the high 300s and even 10 units of insulin
(quite a lot for a 75 lb girl) didn’t ever bring her blood sugars in range.
Only daybreak did. You know that very typical remark about
growing kids? Goes something like this, “My goodness! It looks like you’ve shot
up over night!” It’s true. It does happen overnight, and it can be overnight
for three or four nights in a row. That’s three or four nights when I’m losing
sleep and up every three hours re-checking and bolusing and dwelling on how
much worse it would be if I didn’t do these things. I can’t even begin to
imagine what Alex’s A1C is going to be – I might just forego doing the A1C
until she’s 18 or so.
What’s most frustrating is that the first night you get
those high numbers you wonder if it couldn’t be food related or perhaps an
illness coming on, so you just do your normal thing and hope for the best. Then
the second night you think to yourself, okay it must be puberty so maybe what
I’ll do tomorrow is run a temp basal. That seems to work for day 3 and you’re
content because you’ve been able to keep her sugars down a bit (still not ideal
but 180 is way better than 380!) though now you’re up every two hours checking
just to be sure. And then on day 4 your 2:00 am check finds a low. Oops and
ugh. Guess this growing body is taking a breather.
Then a week or two later it starts all over again.
It’s maddening.
So let me tell you about our summer. It was wonderful. We
went to N.J. for the month of August to see our family, and stayed in a lovely
little cabin just near Six Flags. We had bought season passes for a ridiculous
amount of money but certainly got our money’s worth since we were there nearly
every day for a few hours.
Now, I like amusement parks and in my younger days when Six
Flags was just Great Adventure I did all the rides including the roller
coasters like Lightening Loops and Rolling Thunder. Well Lightening Loops is long
gone though Rolling Thunder still hanging in. But the park’s main attractions
are the big boys, Superman – the Ride, Batman the Dark Knight, Bizarro, Nitro,
El Toro and of course, the king of all roller coasters in the whole wide world,
Kingda Ka.
I am no coward but neither am I a nut.
But I am a parent and before I’d let my 11-year old daughter
go on any of these rides I had to “test” them out first. Maybe I am a nut after
all. But I wanted to see how they were, and assess whether or not I thought my daughter
could handle them. In the end I got up the nerve to ride them all except Nitro (I absolutely must have shoulder harnesses to hold onto!) and Kingda Ka (just no and after I saw the picture of my two sons riding it the answer is still no, and that goes for Alex, too).
The rides can be scary for any kid but the adrenaline rush
for a type 1 kid could really mess up a blood sugar – in either direction.
My husband and I tried our hardest to be crazy careful; we
checked her blood sugar before she went on a ride, we made her carry glucose
tabs in her pocket or the pocket of whomever was with her. There was always a
soda or a juice box waiting. But still we made mistakes, all of us.
The first time was when Alex was riding on El
Toro with her brothers and cousin; it was night time and they had
just been on it once (for the first time ever for Alex and her cousin) when
they dashed back to say they were going on again. I pulled Alex over for a
quick recheck. She was 50 mg, with some insulin still in her system. Not a
number good enough to go on any ride, much less a roller coaster with a 176
foot drop and g-forces of 4.4. No.Friggin.Way.
But Alex was desperate to go again before the park closed in
10 minutes! Here’s how it played out; she gulped down a whole bottle of coke
and chewed 2 glucose tabs while her brothers and cousin stood anxiously by (it
looked like the four of them were in dire need of a bathroom, they were
jiggling so much with impatience). An 80 mg was the best I was going to get if they were going
to be on the ride, so off they raced with glucose tabs in one of Sean’s pockets
and a juice box in the other. I followed to the picture booth where they take
snapshots of all the riders as they take plummet at 70 miles per hour. There
was Alex and her crew – screaming wildly and grinning their heads off, with
their hands in the air. With their hands in the air?!
Insanity runs in our family apparently.
We had one more run in with a crazy blood sugar at the
amusement park and it was not good (I know, are they ever?). We had waited in
line to get on Bizarro, another crazy roller coaster with a lot of inversions.
I was waiting with my niece Natasha, Alex and Sylvester; the boys were
somewhere behind us. Our ride was next, maybe 2 minutes more of waiting when
Alex says she doesn’t feel well and Sly offers to take her off while I ride
with Tasha. He and Alex head for the exit ramp. I look down then look up again
a moment later and Sly is carrying Alex in his arms her head is slumped on his
shoulder.
I’m still trembling as I think of this. He said her knees
had buckled and she was on the verge of passing out, so he grabbed her and
carried her down the 4 flights of metal steps to the ground. I ran behind with
Tasha in tow – Sean and Mike had no idea and were still ready to go on the
ride. We sat Alex on the ground and I checked her sugar with quaking and
shaking hands while she drank the Coke her step-brother Jules had just run for.
She was as white as a sheet, but she wasn’t low – a rebound? I don’t know; we
had checked her before we got on the ride but we did have to wait a while so
maybe the heat of the day and anxiety conspired? I still don’t know. I do know
that I never want to see my husband having to carry my daughter in his arms
again like that. Ever. But I am also ever so thankful that he did and that he
was there with us. In a theme park surrounded by the “heroes” that I grew up
with – Superman and Batman – they couldn’t hold a candle to my husband on that
day.
Did that episode stop Alex from going on her rides, or me
from letting her? Of course not; as we T1 parents always say, our kids can do
anything that any other kid can do. And I’d be doing Alex a grave injustice if
I treated her differently just because she’s got type 1 diabetes. She’s still a kid, a
growing one, but a kid nonetheless and it's my job to make sure she does it right.
